These two are my wonderful, wonderful nephew and niece. I love them dearly and I love having two models! These pictures were taken a couple of years ago, so you will see more of them!
Tuesday, January 27, 2009
my first pics.
These two are my wonderful, wonderful nephew and niece. I love them dearly and I love having two models! These pictures were taken a couple of years ago, so you will see more of them!
Sunday, January 25, 2009
The front page!
I am still working to raise awareness for family with babies & children with heart defects. So Paul talked to the local newspaper and we set up an interview on Sat. I explained how we learned of Torie's heart defect and how little funds go toward research (only a fraction of 1 penny) for peds! We then took some pics of Torie playing-which she loved! But, I sure did not expect it to be front page of today's paper!! That amazed all of us. But I am glad to have the chance to help other families. Here are the links to the pages.
http://media.iadsnetwork.com/quickpagepdf/pdfs/59000/59642.pdf
http://media.iadsnetwork.com/quickpagepdf/pdfs/59000/59647.pdf
the links are in order, 1st page, and then it con'ts to the 6th page. anyway, this is one more step toward helping others!
http://media.iadsnetwork.com/quickpagepdf/pdfs/59000/59642.pdf
http://media.iadsnetwork.com/quickpagepdf/pdfs/59000/59647.pdf
the links are in order, 1st page, and then it con'ts to the 6th page. anyway, this is one more step toward helping others!
Tuesday, January 20, 2009
Congenital Heart Defects....
http://www.itsmyheart.org/chd-information/chd-facts/
Kim found this link and I wanted to add it to my blog too. Some of you may or may not know that my daughter was born with a heart defect. But do you know anything about heart defects? i know, I know, you have probably heard of a heart murmur, or a whole in someone's heart.But do you really know what that means? Did you know there is more that 1 "type" of whole? More than just an irregular heart beat? Did you know that 1 out of every 85 babies is born with some type of heart defect??I have copy the info from the link and pasted it below. Please read through it. Congenital Heart Defect Awareness week is Feb 7-14. Please think about all the babies born every year(approx 40,000) that has to survive. These babies don't get to live like everyone else. They live to survive. I will be posting more about this and our new life that began on July 22,2006. Pics will be included. yes, pictures of my child from her OPEN HEART SURGERY AT 8 MONTHS OLD. Yes, that is how much these babies go through! Please pray for them. Please read the info below. It will teach you something.
Congenital Heart Defects are the #1 birth defect. Source: March of Dimes
Congenital Heart Defects are the #1 cause of birth defect related deaths. Source: March of Dimes About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect. (approx. 40,000/year) Source: Children’s Heart Foundation
Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. Source: Children’s Heart Foundation
The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD. Source: Children’s Heart Foundation
This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Source: Children’s Heart Foundation
The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year. Source: Children’s Heart Foundation
Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research. Source: Children’s Heart Foundation
Though research is ongoing, at least 35 defects have now been identified.
4-8% born with CHD have Hypoplastic Left Heart Syndrome
4-10% born with CHD have Atrioventricular Septal Defects
8-11% born with CHD have Coarctation of the Aorta
9-14% born with CHD have Tetralogy of Fallot
10-11% born with CHD have Transposition of the Great Arteries
14-16% born with CHD have Ventricular Septal Defects
Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood. Source: March of Dimes
It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications. Source: March of Dimes
Kim found this link and I wanted to add it to my blog too. Some of you may or may not know that my daughter was born with a heart defect. But do you know anything about heart defects? i know, I know, you have probably heard of a heart murmur, or a whole in someone's heart.But do you really know what that means? Did you know there is more that 1 "type" of whole? More than just an irregular heart beat? Did you know that 1 out of every 85 babies is born with some type of heart defect??I have copy the info from the link and pasted it below. Please read through it. Congenital Heart Defect Awareness week is Feb 7-14. Please think about all the babies born every year(approx 40,000) that has to survive. These babies don't get to live like everyone else. They live to survive. I will be posting more about this and our new life that began on July 22,2006. Pics will be included. yes, pictures of my child from her OPEN HEART SURGERY AT 8 MONTHS OLD. Yes, that is how much these babies go through! Please pray for them. Please read the info below. It will teach you something.
Congenital Heart Defects are the #1 birth defect. Source: March of Dimes
Congenital Heart Defects are the #1 cause of birth defect related deaths. Source: March of Dimes About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect. (approx. 40,000/year) Source: Children’s Heart Foundation
Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. Source: Children’s Heart Foundation
The American Heart Association directs only $0.30 of every dollar donated toward research. The remainder goes toward administration, education and fundraising efforts. Of the $0.30 that goes toward research only $0.01 goes toward pediatric cardiology for CHD. Source: Children’s Heart Foundation
This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Source: Children’s Heart Foundation
The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year. Source: Children’s Heart Foundation
Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research. Source: Children’s Heart Foundation
Though research is ongoing, at least 35 defects have now been identified.
4-8% born with CHD have Hypoplastic Left Heart Syndrome
4-10% born with CHD have Atrioventricular Septal Defects
8-11% born with CHD have Coarctation of the Aorta
9-14% born with CHD have Tetralogy of Fallot
10-11% born with CHD have Transposition of the Great Arteries
14-16% born with CHD have Ventricular Septal Defects
Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood. Source: March of Dimes
It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications. Source: March of Dimes
Friday, January 16, 2009
Our 1st wk of Daycare
Well, Torie finished her first week of daycare. And she has done so well. She never cried when dh took her in the morning.Her daily report states what all she has played/nap time and meals. Torie is taking 2-2 1/2 hour naps! lol. That's better than home. I know part of that is getting adjusted to waking earlier and going to bed earlier. But she's happy on a daily basis and eats almost all of her meals and afternoon snack. I can't decide if she's eating more because she does not constantly have a cup or going thru a growth spurt-either way, I am so proud of how well she is doing. The lady that watches Torie is like a walking angel for us. She was so understanding of Torie's health, and we agree with everything she has said/done. What more can a parent ask for?!? Truly walking angel! Mrs Glenda is a wonderful woman.
Becky
Torie 7/06, tof & di George syndrome,ohs at 8 mo
~o how far we have came!
Becky
Torie 7/06, tof & di George syndrome,ohs at 8 mo
~o how far we have came!
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